Mucoviscidosis quality assurance. Problems, success and prospects 1995-1998
Stern, M.; Sens, B.; Wiedemann, B.
Zeitschrift für Arztliche Fortbildung und Qualitatssicherung 92(7): 513-519
1998
ISSN/ISBN: 1431-7621 PMID: 9842699 Document Number: 494301
The German project "quality assurance in cystic fibrosis" collects data from 97 CF centres with 4,306 patients. Project goals are improvement of quality of life and life expectancy catching up with international standards. Collection of data and evaluation are done anonymously. In Germany, most patients including adults are under care of paediatric institutions. Nutrition and lung function data with decisive prognostic significance (weight for height, one-second-capacity) exhibited less favourable results for patients treated by very small institutions (less than 20 patients). Between 1995 and 1997 some parameters could be improved particularly in pupils children and young adults. In Germany, mean cumulative survival was 29.3 years for 1997. This figure is comparable to other European countries. However, further improvement with respect to quality of structure has to be made.