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Developing a family-based HIV prevention intervention in rural Kenya: challenges in conducting community-based participatory research

Puffer, E.S.; Pian, J.; Sikkema, K.J.; Ogwang-Odhiambo, R.A.; Broverman, S.A.

Journal of Empirical Research on Human Research Ethics Jerhre 8(2): 119-128

2013

ISSN/ISBN: 1556-2646
PMID: 23651936
DOI: 10.1525/jer.2013.8.2.119
Document Number: 578161
Community-Based Participatory research (CBPR) introduces new ethical challenges for HIV prevention studies in low-resource international settings. We describe a CBPR study in rural Kenya to develop and pilot a family-based HIV prevention and mental health promotion intervention. Academic partners (APs) worked with a community advisory committee (CAC) during formative research, intervention development, and a pilot trial. Ethical challenges emerged related to: negotiating power imbalances between APs and the CAC; CAC members' shifting roles as part of the CAC and wider community; and anticipated challenges in decision making about sustainability. Factors contributing to ethical dilemmas included low access to education, scarcity of financial resources, and the shortage of HIV-related services despite high prevalence.

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