Secure communication and management of clinical and genomic data: the use of pseudonymisation as privacy enhancing technique
Claerhout, B.; De Moor, G.J.; De Meyer, F.
Studies in Health Technology and Informatics 95: 170-175
2003
ISSN/ISBN: 0926-9630 PMID: 14663982 Document Number: 564776
The growing need of managing both clinical and genetic data raises important legal and ethical challenges. This article introduces some of the privacy protection problems related to genomic medicine and highlights the relevance of Trusted Third Parties and of Privacy Enhancing Techniques (PETs) in the context of e.g. research. Practical approaches based on two pseudonymisation models, for both batch and interactive data collection and exchange, are presented.