Patients' perspective of living with PAH or CTEPH in Sweden
Ivarsson, B.; Hesselstrand, R.; Rådegran, G.ör.; Kjellström, B.
Lakartidningen 116
2019
ISSN/ISBN: 1652-7518 PMID: 31192407 Document Number: 698158
For patients living with chronic conditions, the daily life will change due to symptoms, drug treatment, and psychosocial factors caused by the disease. Our studies show that Swedish patients with PAH or CTEPH are satisfied with the information they have received, but still have a wish for more. Therefore, it is important to repeat the information on a regular basis and to make sure that patients have understood and remember the messages. In order to increase the knowledge about their disease, improve compliance with treatment and quality of life, patients and next of kin should continuously be informed by the multidisciplinary team at the PAH/CTEPH-specialist care centers.