The challenges faced by researchers involving patients as partners in research
Nielsen, M.K.; Sandvei, M.; Hørder, M.
Ugeskrift for Laeger 180(45)
2018
ISSN/ISBN: 1603-6824 PMID: 30404714 Document Number: 697163
This review presents recent findings from the literature on the challenges that researchers may face, when patients get involved as partners in research: which patients to recruit, how to clarify and set boundaries to the roles of the patient and the researcher, and how to evaluate the outcome of involvement. Patient involvement may challenge the professional identity of a researcher. Researchers are often uncertain about how to establish a meaningful collaboration with partners whose knowledge comes from the lived experience of being a patient.