A database for systemic lupus erythematosus and systemic connective tissue disorders
Edworthy, S.M.
Rheumatic Diseases Clinics of North America 21(2): 501-525
1995
ISSN/ISBN: 0889-857X PMID: 7631041 Document Number: 451350
Connective tissue diseases (CTDs) typically have a wide spectrum of symptoms that vary widely over time, often requiring a large array of medications and laboratory tests. This presents a challenge in all stages of database development, including the selection of data elements, collection methods, coding of variables, and selection of a relational database with the potential for tracking. There is a distinct need for valid, reliable data in a usable form to assist in the diagnosis, management, and research of CTDs. This article discusses the factors involved, provides examples of data collection tools that are presently used, and suggests how they might be employed by the physician in diagnosis and management of CTDs.